RESOURCES

We want to share some of the helpful organizations and products that have been instrumental in our ALS Journey.

01.

OUR FAVS + RESOURCES

02.

HELPFUL ORGANIZATIONS

03.

CAREGIVER SUPPORT

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OUR FAVS + RESOURCES

AMAZON

Amazon Items

Here are some items we have found to be helpful through different seasons - ranging from smoothie lids to walkers!

FREE DOWNLOAD

Checklist + Emergency plan

This is the checklist we use to track our daily goals, share updates among caretakers and keep us focused!

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JEREMY RIDDLE

THIS Song

I hear Justin listening to this song daily right now :)

The words feel like our hearts cry!

FAV SWEATSHIRT

CAREGIVER GIFT

Lori wears this cozy sweatshirt every week! Proud of my job, even if we're not paid for it!

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HELPFUL ORGANIZATIONS

I AM ALS We're putting an end to ALS. Until that day, we're here to help you through it	Screen Shot 2024-02-27 at 10.25.50 PM Team Gleason provides and supplements equipment and accessories for those living with ALS and other neurodegenerative diseases or injuries. With a changing medical benefits climate, we fill a void that most often, families living with these diseases cannot afford.	HealthWell Foundation Our Mission: To reduce financial barriers to care for underinsured patients with chronic or life-altering diseases.
IANACARE APP We encourage, empower, and equip family caregivers as they navigate care happening in the home	EVERYONE.ORG Everyone.org is a registered international pharmacy that can guide you and your physician to safely and legally access a prescription medicine that is not yet approved or available in your country.	SAMARITAN MINISTRIES A community of Christians paying one another's medical bills.
A WEEK AWAY FOUNDATION At A Week Away, we coordinate and finance respite weeks for families who are battling a life-threatening illness, with the goal of providing them the hope they need to continue their fight.	SYNAPTICURE Synapticure provides compassionate, personalized care for individuals and families living with neurodegenerative disease. Our team of expert clinicians and care coordinators ensure every patient has access to the care they deserve.	ALS UNTANGLED ALSUntangled® reviews alternative and off label treatments, with the goal of helping people with ALS make more informed decisions about them.
CCALS The organization provides resources including equipment, educational opportunities, insurance and Medicare assistance, guidance and awareness with regards to living with ALS, caregiving, and exploring end-of-life when invited	CONTROLBIONICS Control Bionics offers a suite of assistive technology, including dedicated speech generating devices, to assist people living with complex communication and physical needs.	Mass General At the Healey & AMG Center for ALS, we are on a quest to discover life-saving therapies for approximately 500,000 people worldwide who are affected by amyotrophic lateral sclerosis (ALS). ALS Clinic Visit, MGH ALS Link, Weekly Webinars, HEALY Platform Clinical Trials
COSTPLUS DRUG COMPANY Our goal is to dramatically reduce the cost of drugs, but we also think that it is just as important to introduce transparency to the pricing of drugs so patients know they are getting a fair price.	HER ALS STORY ALS is extremely isolating, but Her ALS Story provides a community for our members that offers instant connection and support. Sharing personal experiences and knowledge is life-changing and helps us normalize our experiences with ALS.	HOPE LOVES COMPANY Hope Loves Company is a nationally recognized nonprofit that provides support, resources and community to children who have or had a loved one with ALS. We give children and young adult caregivers the tools they need to navigate grief, find joy, and remain hopeful.
NEALS The mission of the Northeast Amyotrophic Lateral Sclerosis Consortium® (NEALS) is to rapidly translate scientific advances into clinical research and new treatments for people with Amyotrophic Lateral Sclerosis (ALS) and motor neuron disease.